Sunday 27 March 2011

Coincidence?

I went straight home and googled ‘ventriculomegaly’. Here’s what it said on Wikipedia:

``Ventriculomegaly is a brain condition that occurs when the lateral ventricles become dilated. The most common definition uses a width of the atrium of the lateral ventricle of greater than 10 mm. This occurs in around 1% of pregnancies. When this measurement is between 10 and 15 mm, the ventriculomegaly may be described as mild to moderate. When the measurement is greater than 15mm, the ventriculomegaly may be classified as more severe. Enlargement of the ventricles may occur for a number of reasons, such as loss of brain volume (perhaps due to infection or infarction), or impaired outflow or absorption of cerebrospinal fluid from the ventricles. Often, however, there is no identifiable cause.

Associations
Ventriculomegaly is also known to be associated with other malformations such as agenesis of the corpus callosum, spina bifida, and heart defects. Fetuses with both isolated ventriculomegaly and with other anomalies have an increased risk of having a chromosomal abnormality, including that of Down Syndrome. Many conditions associated with ventriculomegaly can be defined prior to birth, but the possibility remains of other anomalies (either structural, chromosomal or genetic) only being identified later in pregnancy or after birth. Ventriculomegaly associated with abnormal findings and other structural malformations, often has an adverse prognosis, which ranges from disability (often mild) to death. However, in cases of mild isolated ventriculomegaly, there is around a 90% chance of a normal outcome.’’

I read this, and the thing that leapt out at me was that ventriculomegaly is apparently associated with agenesis of the corpus callosum, what our first baby had. But this baby has his corpus callosum, I had asked the ultrasound technician specifically. But what is going on, surely this cannot be a coincidence??

Thursday 17 March 2011

The Scream


From now on, my state of mind can best be described as:


                                               

Wednesday 16 March 2011

The Sum of All Fears

At the 21 week scan, the ultrasound technician asked that we see the consultant again. I thought nothing of it as I thought this was a formality, but afterwards my husband said he could tell that the expression on her face had changed.

We moved to the next room where the consultant scanned me again. He told us that the ventricles in the baby’s brain were slightly enlarged (11mm), something known as ventriculomegaly. As long as they didn’t grow any more, most babies were fine. Our hearts dropped off a cliff. I thought this is it, this is going to get worse, we are not getting out of this one. And indeed that is what happened.